Voices Not Heard: A Systematic Review of Adolescents' and Emerging Adults' Perspectives of Health Care Transition
Background: A better understanding of the needs of adolescents and emerging adults with special health care needs (AEA-SHCNs) is essential to provide health care transition services that represent best practices. The purpose of this systematic review was to evaluate the research on health care transition for AEA-SHCNs from their perspectives.
Methods: A comprehensive literature review of research publications since 2005 was performed using the PubMed, Cumulative Index to Nursing and Allied Health Literature, and EBSCO databases. Thirty-five studies met the final review criteria.
Results: The process of transition from child to adult for AEA-SHCNs is complex. Individuals experiencing the transition desire to be a part of the process and want providers who will listen and be sensitive to their needs, which are often different from others receiving health care at the same facility.
Conclusions: More research that considers the voice of the AEA-SHCNs related to transition from pediatric to adult care is needed.
Betz, Cecily L.; Lobo, Marie L.; Nehring, Wendy M.; and Bui, Kim. 2013. Voices Not Heard: A Systematic Review of Adolescents' and Emerging Adults' Perspectives of Health Care Transition. Nursing Outlook. Vol.61(5). 311-336. https://doi.org/10.1016/j.outlook.2013.01.008