The Role of Literature in Understanding Terminal Illness: Exploring Patient Experience through Narrative Medicine

Abstract

This thesis explores the intersection of literature and medicine, specifically how narratives within literature can deepen understanding of the emotional and existential aspects of terminal illness. While medical education emphasizes clinical and biological knowledge, the humanities, particularly literature, have the potential to enhance empathy and communication in healthcare. The focus of this research is to examine how literary works can shed light on patient experiences, particularly the emotional and psychological impact of terminal diagnoses. This study addresses a critical gap in patient-centered care by emphasizing the need to consider not only the physical aspects of illness but also the social, psychological, and emotional dimensions that significantly affect the quality of care. A narrative analysis approach will be used to examine various works of literature that portray the experience of terminal illness. Key texts such as “When Breath Becomes Air” by Paul Kalanithi, “My Own Country” by Abraham Verghese, “The Death of Ivan Ilyich” by Leo Tolstoy, and “W;t” by Margaret Edson, will be analyzed to explore themes of medical dehumanization, the redefinition of self in the face of death, and the effects of terminal illness on relationships. The analysis will explore how patients are perceived by others, how they view themselves, and how their relationships with family, friends, and healthcare providers evolve. Preliminary findings suggest that literature offers valuable insights into the lived experiences of terminally ill patients, fostering greater empathy and understanding. By examining narratives, the study aims to promote a more compassionate and holistic approach to healthcare. Ultimately, this research seeks to highlight the importance of integrating the humanities into medical practice to improve patient outcomes, particularly in the context of terminal illness, where emotional and existential concerns are deeply intertwined with physical care.

Start Time

16-4-2025 10:00 AM

End Time

16-4-2025 11:00 AM

Room Number

252

Presentation Type

Oral Presentation

Presentation Subtype

UG Orals

Presentation Category

Arts and Humanities

Faculty Mentor

Joshua Reid

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Apr 16th, 10:00 AM Apr 16th, 11:00 AM

The Role of Literature in Understanding Terminal Illness: Exploring Patient Experience through Narrative Medicine

252

This thesis explores the intersection of literature and medicine, specifically how narratives within literature can deepen understanding of the emotional and existential aspects of terminal illness. While medical education emphasizes clinical and biological knowledge, the humanities, particularly literature, have the potential to enhance empathy and communication in healthcare. The focus of this research is to examine how literary works can shed light on patient experiences, particularly the emotional and psychological impact of terminal diagnoses. This study addresses a critical gap in patient-centered care by emphasizing the need to consider not only the physical aspects of illness but also the social, psychological, and emotional dimensions that significantly affect the quality of care. A narrative analysis approach will be used to examine various works of literature that portray the experience of terminal illness. Key texts such as “When Breath Becomes Air” by Paul Kalanithi, “My Own Country” by Abraham Verghese, “The Death of Ivan Ilyich” by Leo Tolstoy, and “W;t” by Margaret Edson, will be analyzed to explore themes of medical dehumanization, the redefinition of self in the face of death, and the effects of terminal illness on relationships. The analysis will explore how patients are perceived by others, how they view themselves, and how their relationships with family, friends, and healthcare providers evolve. Preliminary findings suggest that literature offers valuable insights into the lived experiences of terminally ill patients, fostering greater empathy and understanding. By examining narratives, the study aims to promote a more compassionate and holistic approach to healthcare. Ultimately, this research seeks to highlight the importance of integrating the humanities into medical practice to improve patient outcomes, particularly in the context of terminal illness, where emotional and existential concerns are deeply intertwined with physical care.